Self-Help Group Sourcebook OnLine Sponsored By CenterSite, LLC
Celebrate "Self-Help Group Awareness" Month in January
Updated April 2018 Searching The Sourcebook: To find self-help organizations and groups, enter a keyword or phrase for a particular type of problem. For instance, if you're interested in finding support organizations for depression or alcoholism simply enter either word. If you don't find what you are searching for using whole words, try searching with word fragments (e.g., "depres", or "alc"). A word fragment search should return more groups than a whole word search (although some of the groups returned may be less directly relevant to what you are searching for). Alternatively, select a problem area from the sample list of topics below: Aarskog SyndromeAccident VictimsAcid Maltase Deficiency (Pompe Disease)AcidemiaAcne ScarsAcromegalyAddison's/Adrenal DiseaseAdoptionAging / Older PersonsAIDSAlbinismAlcohol AbuseAllergyAlopecia AreataALS (Lou Gehrig's Disease)Alveolar Capillary DysplasiaAlzheimer's Disease/DementiaAmbiguous GenitaliaAmputation / Limb DeficiencyAmyloidosisAndrogen InsensitivityAnemiaAngelman SyndromeAniridiaAnkylosing SpondylitisAnophthalmiaAnorchidismAnosmiaAnosmia/ParosmiaAnxiety Attacks / Phobias / AgoraphobiaAphasiaApnea, sleepApraxiaArachnoiditisArterio Venous Malformation / Brain AneurysmArthritisArthrogryposisArtistic CreativityAsthmaAtaxiaAutism / Asperger SyndromeBarth SyndromeBatten DiseaseBehcet's SyndromeBenign Fasciculation SyndromeBereavement (General)Bladder ExstrophyBlind / Visually ImpairedBrachial Plexus Brachial Plexus Injury/Erb's PalsyBrain Aneurysm Brain Injury | Brain TumorBreast Implant SupportBullyingBurn SurvivorsCanavan DiseaseCancerCarbohydrate Deficient Glycoprotein SyndromeCaregivers / Families of Nursing Home ResidentsCavernous AngiomaCeliac SprueCerebellum DisorderCerebral PalsyCerebrocostomandibularCesarean BirthCharcot-Marie-ToothCHARGE SyndromeChemical Hypersensitivity/Environmental IllnessChiari MalformationChild Abuse (Physical / Emotional)Child CustodyChildbirth / BreastfeedingChordoma (rare tumor)Chromosome DisordersChronic Fatigue SyndromeCircumcisionCleft PalateCloves Syndrome Cockayne SyndromeCodependency / Dysfunctional FamiliesCoffin-Lowry SyndromeCongenital Adrenal HyperplasiaCongenital Central HypoventilationCongenital Diaphragmatic Hernia Cornelia De LangeCortico-Basal Ganglionic Degeneration (CBGD)Costello SyndromeCowden Syndrome / BRRS Cri du Chat (5P) SyndromeCrime Victims / OffendersCultsCushing's DiseaseCystic FibrosisCystinosisDancing Eye SyndromeDeaf / Hearing Impaired / Tinnitus / Meniere'sDeath of a Child / Fetal LossDebt / OverspendingDentatorubral Pallidoluysian AtrophyDepression / Manic-Depression / Post-Partum Dep.DiabetesDisabilities (General) / Spinal Cord InjuryDravet Syndrome Drug AbuseDubowitz SyndromeDwarfismDysautonomiaDystoniaDystrophic Epidermolysis BullosaEar AnomaliesEating DisordersEctodermal DysplasiasEczemaEhlers Danlos SyndromeEmphysemaEmployment / RetirementEncephalitisEndometriosisEosinophilic Disorders Epilepsy / Convulsive DisordersErectile Dysfunction and ImpotenceErythromelalgiaEssential TremorFabry DiseaseFacial DisfigurementFacioscapulohumeral Muscular DystrophyFamilies of Mentally IllFatty Oxidation DisorderFetal Alcohol SyndromeFetal Alcohol Syndrome Drug AffectedFibrodysplasia Ossificans ProgressivaFibromuscular DysplasiaFibromyalgiaFibrous DysplasiaFinanceFloating Harbor SyndromeFoster Parents / ChildrenGalactosemiaGamblingGamingGastroesophageal RefluxGastrointestinal Stromal TumorsGaucher DiseaseGenetic DisordersGlycogen Storage DiseaseGorlin Syndrome (aka nevoid basal cell carcinoma)Granulomatous Disease, ChronicGraves DiseaseGuillain-Barre SyndromeHallerevorden-Spatz SyndromeHead / Brain Injury / Coma SurvivorsHeadachesHeart DiseaseHELLP SyndromeHemifacial SpasmHemiplegiaHemophiliaHepatitisHereditary Hemorrhagic TelangiectasiaHermansky-Pudlak SyndromeHerpes / Sexually Transmitted DiseasesHip ReplacementHistiocytosis-XHousingHuman Papilloma VirusHuntington's DiseaseHydrocephalusHyperacusis (sensitive hearing)HypoparathyroidismHypophosphatasiaHypospadias and Epispadias Hypothyroid IchthyosisIdiopathic Thrombocytopenic PurpuraImmune DeficiencyIncontinenceIncontinentia PigmentiInfectious Illness (General)Infertility / ChildlessnessInflammatory Bowel Disease/Irritable Bowel Synd.Intellectual Disabilities / Down SyndromeInternet AddictionInterstitial CystitisIron Disorders Kabuki SyndromeKallmann's SyndromeKawasaki DiseaseKennedy's DiseaseKidney DiseaseKlinefelter SyndromeLaryngectomyLBGTQIA (Lesbian, bisexual, gay, transgender, questioning, intersex and asexual)Lead PoisoningLearning Disability / Attention Deficit DisorderLennox-Gastaut SyndromeLeukodystrophyLife Threatening / Chronic IllnessLightning Strike and Electric Shock Little PeopleLiver DiseaseLoin Pain Hematuria SyndromeLoss of LimbLowe SyndromeLung DisordersLupusLyme DiseaseLymphangioleiomyomatosisLymphedemaLysosomal Acid Lipase Deficiency Macrocephaly-Capillary Malformation Maladaptive DaydreamingMannosidosis, AlphaMarfan SyndromeMarriage / FamilyMastocytosisMcCune-Albright SyndromeMemingioma (brain tumor)Men's IssuesMenopauseMental Health (General)Mental Health ConsumersMessinessMetabolic DisordersMiller's SyndromeMitochondrial DisordersMoebius SyndromeMoyaMoya DiseaseMucopolysaccharidoses / Morquio's SyndromeMultiple Endocrine Neoplasia DisordersMultiple Endocrine Neoplasm Type IMultiple Hereditary ExostosesMultiple MyelomaMultiple SclerosisMultiple System Atrophy Muscular DystrophyMyasthenia GravisMyeloproliferative DiseaseMyositisMyotonia CongenitaNager SyndromeNarcolepsyNear Death ExperienceNEPHROTIC SYNDROME NeurofibromatosisNeurological DisordersNeuropathyNevus, CongenitalNiemann Pick Type CNonketotic HyperglycinemiaNystagmusObsessive-Compulsive Disorder (OCD)Opsoclonus-Myoclonus SyndromeOsteogenesis ImperfectaOsteoporosisOstomyOverweightOxalosis & HyperoxaluriaPain, ChronicPanhypopituitarismPapillomatosisParenting / GrandparentingParents of Children with Behavioral ProblemsParents of Disabled / Ill ChildrenParents of Premature / High Risk InfantsParkinson's DiseaseParry-Romberg SyndromePediatric Autoimmune Neuropsychiatric Associated with Strep (PANDAS)Pemphigus / Hailey HaileyPeters' AnomalyPetsPierre RobinPituitary DisordersPolice OfficersPolioPolycystic Ovarian SyndromePolymicrogyria Prader-Willi SyndromePrecocious PubertyPremature Ovarian FailurePremenstrual Dysphoric Disorder (PMDD)Primary Lateral SclerosisProcrastinationProgressive Supranuclear PalsyProsopagnosia - Face BlindnessProstate ProblemsProstitution | Sex WorkersPrune Belly SyndromePseudo-obstructionPseudoxanthoma ElasticumPsoriasisPulmonary HypertensionPulmonary ProblemsRare Disorders, GeneralRaynaud's DiseaseReflex Sympathetic DystrophyReligionReligious / ClergyRespiratory Disease / EmphysemaRestless Leg SyndromeRett SyndromeRobinow SyndromeRubinstein-Taybi SyndromeRussell-Silver SyndromeSarcoidosisSchizencephaly SclerodermaScoliosisSelective MutismSelf-Abuse/Self-MutilationSeparation / DivorceSeptember 11thSepto Optic DysplasiaSevere Combined Immunodeficiency Sex / Love AddictionSexual Abuse / Incest / Rape/Partners of Sexually AbusedSexual Orientation / Gender IdentityShort Bowel SyndromeShwachman SyndromeSickle Cell DiseaseSingle ParentingSjogren's SyndromeSkin DisordersSmith-Lemli-OpitzSmokingSotos SyndromeSpasmodic DysphoniaSpasmodic TorticollisSpastic Paraparesis / Familial Spastic ParaplegiaSpeech / StutteringSpinal Cord TumorSpinal Muscular AtrophySpouse Abuse / Domestic ViolenceStepparentingStevens Johnson SyndromeStickler SyndromeStrabismus (Cross-eyed)StrokeSuicide SurvivorsSwallowing Disorders / DysphagiaTay-Sachs DiseaseTemporomandibular Joint Dysfunction (TMJ)ThrombophiliaThyroidTourette SyndromeTownes-Brocks Syndrome Tracheo Esophageal FistulaTransplant Recipient, OrganTransverse MyelitisTrauma and Post-Traumatic Stress Disorder (PTSD)Trichorhinophalangeal SyndromeTrigeminal Neuralgia/Tic DouloureuxTrimethylaminuriaTrisomyTube FeedingTuberous SclerosisTurner SyndromeTwin to Twin Transfusion SyndromeTwins & TripletsUndiagnosed IllnessUrea Cycle DisordersUterine Mullerian AnomaliesVaccineVACTERL AssociationValley FeverVascular AnomaliesVascular Birthmark Velo-Cardio-Facial Syndrome (VCFS)Ventilator UsersVestibular DisordersVeterans / MilitaryVitiligoVomiting, CyclicVon Hippel LindauVulvar DisordersWAGRWaldenstrom's MacroglobulinemiaWegener's GranulomatosisWidows / WidowersWilliam's SyndromeWillis-Ekbom Disease Wilson's DiseaseWomen's HealthWomen's IssuesWorkaholicsWorster-Drought SyndromeXeroderma PigmentosumYouth / Students / Adolescents Note: A selection in the drop-down box will override any content in the free-form text entry box above.
To find self-help organizations and groups, enter a keyword or phrase for a particular type of problem. For instance, if you're interested in finding support organizations for depression or alcoholism simply enter either word.
If you don't find what you are searching for using whole words, try searching with word fragments (e.g., "depres", or "alc"). A word fragment search should return more groups than a whole word search (although some of the groups returned may be less directly relevant to what you are searching for).
Alternatively, select a problem area from the sample list of topics below:
Aarskog SyndromeAccident VictimsAcid Maltase Deficiency (Pompe Disease)AcidemiaAcne ScarsAcromegalyAddison's/Adrenal DiseaseAdoptionAging / Older PersonsAIDSAlbinismAlcohol AbuseAllergyAlopecia AreataALS (Lou Gehrig's Disease)Alveolar Capillary DysplasiaAlzheimer's Disease/DementiaAmbiguous GenitaliaAmputation / Limb DeficiencyAmyloidosisAndrogen InsensitivityAnemiaAngelman SyndromeAniridiaAnkylosing SpondylitisAnophthalmiaAnorchidismAnosmiaAnosmia/ParosmiaAnxiety Attacks / Phobias / AgoraphobiaAphasiaApnea, sleepApraxiaArachnoiditisArterio Venous Malformation / Brain AneurysmArthritisArthrogryposisArtistic CreativityAsthmaAtaxiaAutism / Asperger SyndromeBarth SyndromeBatten DiseaseBehcet's SyndromeBenign Fasciculation SyndromeBereavement (General)Bladder ExstrophyBlind / Visually ImpairedBrachial Plexus Brachial Plexus Injury/Erb's PalsyBrain Aneurysm Brain Injury | Brain TumorBreast Implant SupportBullyingBurn SurvivorsCanavan DiseaseCancerCarbohydrate Deficient Glycoprotein SyndromeCaregivers / Families of Nursing Home ResidentsCavernous AngiomaCeliac SprueCerebellum DisorderCerebral PalsyCerebrocostomandibularCesarean BirthCharcot-Marie-ToothCHARGE SyndromeChemical Hypersensitivity/Environmental IllnessChiari MalformationChild Abuse (Physical / Emotional)Child CustodyChildbirth / BreastfeedingChordoma (rare tumor)Chromosome DisordersChronic Fatigue SyndromeCircumcisionCleft PalateCloves Syndrome Cockayne SyndromeCodependency / Dysfunctional FamiliesCoffin-Lowry SyndromeCongenital Adrenal HyperplasiaCongenital Central HypoventilationCongenital Diaphragmatic Hernia Cornelia De LangeCortico-Basal Ganglionic Degeneration (CBGD)Costello SyndromeCowden Syndrome / BRRS Cri du Chat (5P) SyndromeCrime Victims / OffendersCultsCushing's DiseaseCystic FibrosisCystinosisDancing Eye SyndromeDeaf / Hearing Impaired / Tinnitus / Meniere'sDeath of a Child / Fetal LossDebt / OverspendingDentatorubral Pallidoluysian AtrophyDepression / Manic-Depression / Post-Partum Dep.DiabetesDisabilities (General) / Spinal Cord InjuryDravet Syndrome Drug AbuseDubowitz SyndromeDwarfismDysautonomiaDystoniaDystrophic Epidermolysis BullosaEar AnomaliesEating DisordersEctodermal DysplasiasEczemaEhlers Danlos SyndromeEmphysemaEmployment / RetirementEncephalitisEndometriosisEosinophilic Disorders Epilepsy / Convulsive DisordersErectile Dysfunction and ImpotenceErythromelalgiaEssential TremorFabry DiseaseFacial DisfigurementFacioscapulohumeral Muscular DystrophyFamilies of Mentally IllFatty Oxidation DisorderFetal Alcohol SyndromeFetal Alcohol Syndrome Drug AffectedFibrodysplasia Ossificans ProgressivaFibromuscular DysplasiaFibromyalgiaFibrous DysplasiaFinanceFloating Harbor SyndromeFoster Parents / ChildrenGalactosemiaGamblingGamingGastroesophageal RefluxGastrointestinal Stromal TumorsGaucher DiseaseGenetic DisordersGlycogen Storage DiseaseGorlin Syndrome (aka nevoid basal cell carcinoma)Granulomatous Disease, ChronicGraves DiseaseGuillain-Barre SyndromeHallerevorden-Spatz SyndromeHead / Brain Injury / Coma SurvivorsHeadachesHeart DiseaseHELLP SyndromeHemifacial SpasmHemiplegiaHemophiliaHepatitisHereditary Hemorrhagic TelangiectasiaHermansky-Pudlak SyndromeHerpes / Sexually Transmitted DiseasesHip ReplacementHistiocytosis-XHousingHuman Papilloma VirusHuntington's DiseaseHydrocephalusHyperacusis (sensitive hearing)HypoparathyroidismHypophosphatasiaHypospadias and Epispadias Hypothyroid IchthyosisIdiopathic Thrombocytopenic PurpuraImmune DeficiencyIncontinenceIncontinentia PigmentiInfectious Illness (General)Infertility / ChildlessnessInflammatory Bowel Disease/Irritable Bowel Synd.Intellectual Disabilities / Down SyndromeInternet AddictionInterstitial CystitisIron Disorders Kabuki SyndromeKallmann's SyndromeKawasaki DiseaseKennedy's DiseaseKidney DiseaseKlinefelter SyndromeLaryngectomyLBGTQIA (Lesbian, bisexual, gay, transgender, questioning, intersex and asexual)Lead PoisoningLearning Disability / Attention Deficit DisorderLennox-Gastaut SyndromeLeukodystrophyLife Threatening / Chronic IllnessLightning Strike and Electric Shock Little PeopleLiver DiseaseLoin Pain Hematuria SyndromeLoss of LimbLowe SyndromeLung DisordersLupusLyme DiseaseLymphangioleiomyomatosisLymphedemaLysosomal Acid Lipase Deficiency Macrocephaly-Capillary Malformation Maladaptive DaydreamingMannosidosis, AlphaMarfan SyndromeMarriage / FamilyMastocytosisMcCune-Albright SyndromeMemingioma (brain tumor)Men's IssuesMenopauseMental Health (General)Mental Health ConsumersMessinessMetabolic DisordersMiller's SyndromeMitochondrial DisordersMoebius SyndromeMoyaMoya DiseaseMucopolysaccharidoses / Morquio's SyndromeMultiple Endocrine Neoplasia DisordersMultiple Endocrine Neoplasm Type IMultiple Hereditary ExostosesMultiple MyelomaMultiple SclerosisMultiple System Atrophy Muscular DystrophyMyasthenia GravisMyeloproliferative DiseaseMyositisMyotonia CongenitaNager SyndromeNarcolepsyNear Death ExperienceNEPHROTIC SYNDROME NeurofibromatosisNeurological DisordersNeuropathyNevus, CongenitalNiemann Pick Type CNonketotic HyperglycinemiaNystagmusObsessive-Compulsive Disorder (OCD)Opsoclonus-Myoclonus SyndromeOsteogenesis ImperfectaOsteoporosisOstomyOverweightOxalosis & HyperoxaluriaPain, ChronicPanhypopituitarismPapillomatosisParenting / GrandparentingParents of Children with Behavioral ProblemsParents of Disabled / Ill ChildrenParents of Premature / High Risk InfantsParkinson's DiseaseParry-Romberg SyndromePediatric Autoimmune Neuropsychiatric Associated with Strep (PANDAS)Pemphigus / Hailey HaileyPeters' AnomalyPetsPierre RobinPituitary DisordersPolice OfficersPolioPolycystic Ovarian SyndromePolymicrogyria Prader-Willi SyndromePrecocious PubertyPremature Ovarian FailurePremenstrual Dysphoric Disorder (PMDD)Primary Lateral SclerosisProcrastinationProgressive Supranuclear PalsyProsopagnosia - Face BlindnessProstate ProblemsProstitution | Sex WorkersPrune Belly SyndromePseudo-obstructionPseudoxanthoma ElasticumPsoriasisPulmonary HypertensionPulmonary ProblemsRare Disorders, GeneralRaynaud's DiseaseReflex Sympathetic DystrophyReligionReligious / ClergyRespiratory Disease / EmphysemaRestless Leg SyndromeRett SyndromeRobinow SyndromeRubinstein-Taybi SyndromeRussell-Silver SyndromeSarcoidosisSchizencephaly SclerodermaScoliosisSelective MutismSelf-Abuse/Self-MutilationSeparation / DivorceSeptember 11thSepto Optic DysplasiaSevere Combined Immunodeficiency Sex / Love AddictionSexual Abuse / Incest / Rape/Partners of Sexually AbusedSexual Orientation / Gender IdentityShort Bowel SyndromeShwachman SyndromeSickle Cell DiseaseSingle ParentingSjogren's SyndromeSkin DisordersSmith-Lemli-OpitzSmokingSotos SyndromeSpasmodic DysphoniaSpasmodic TorticollisSpastic Paraparesis / Familial Spastic ParaplegiaSpeech / StutteringSpinal Cord TumorSpinal Muscular AtrophySpouse Abuse / Domestic ViolenceStepparentingStevens Johnson SyndromeStickler SyndromeStrabismus (Cross-eyed)StrokeSuicide SurvivorsSwallowing Disorders / DysphagiaTay-Sachs DiseaseTemporomandibular Joint Dysfunction (TMJ)ThrombophiliaThyroidTourette SyndromeTownes-Brocks Syndrome Tracheo Esophageal FistulaTransplant Recipient, OrganTransverse MyelitisTrauma and Post-Traumatic Stress Disorder (PTSD)Trichorhinophalangeal SyndromeTrigeminal Neuralgia/Tic DouloureuxTrimethylaminuriaTrisomyTube FeedingTuberous SclerosisTurner SyndromeTwin to Twin Transfusion SyndromeTwins & TripletsUndiagnosed IllnessUrea Cycle DisordersUterine Mullerian AnomaliesVaccineVACTERL AssociationValley FeverVascular AnomaliesVascular Birthmark Velo-Cardio-Facial Syndrome (VCFS)Ventilator UsersVestibular DisordersVeterans / MilitaryVitiligoVomiting, CyclicVon Hippel LindauVulvar DisordersWAGRWaldenstrom's MacroglobulinemiaWegener's GranulomatosisWidows / WidowersWilliam's SyndromeWillis-Ekbom Disease Wilson's DiseaseWomen's HealthWomen's IssuesWorkaholicsWorster-Drought SyndromeXeroderma PigmentosumYouth / Students / Adolescents
Note: A selection in the drop-down box will override any content in the free-form text entry box above.